Sunday, September 2, 2012


Dear Friends and Family,

We have come to Malu, our retreat, to celebrate the end of our second year in Kenya—and the beginning of our third year here.  It has been an opportunity for reflection on all that we’ve experienced over the past two years.  We’ve also looked ahead and realized how much needs to be accomplished over the next years to see that pediatric neurosurgery is established in East Africa.

For both of us, I think, the chief benefit in coming to Kijabe has been the opportunity to deepen our faith, to draw nearer to God, to feel the peace that has come with following where He has led.  Leland’s work on his sermons this Winter (June, July, August in the Southern hemisphere) and his weekly meditations that he sends to the church members via email have nourished his faith.  My participation in our weekly Bible Study has given me insights into Scripture as well as relationships with the other Bible study members.  Our morning times of prayer and study are precious to us; we awaken with a real thirst for God’s Word.

It is often said that Africans excel in relationships.  I have discovered over the past two years that that is true.  I cherish the relationships that are slowly building here in Kijabe; I feel a part of the staff now, and we have a wonderful time talking, teasing, swapping Swahili. They teach me a word, I teach them a word—like ukungu (fog) which none of the OPD staff knew.  It is probably because we have been told so often that relationships are cherished in Kenya that we have been so shocked to see women disowned by their families, abandoned at the hospital.  One lady recently had a newborn child with a myelomeningocele that was repaired.   She was from the IDP camp (Internally displaced persons) down in the valley and had been transferred to Kijabe from Naivasha Hospital.  She had a husband and two older children.  When it was time for discharge, her husband never came; Purity, our excellent social worker, learned that the husband had taken the two older children back to his home in Western Kenya saying that he would not have a disabled child.  Not only did this lady have no family, she had no money nor clothes.  Purity arranged that the bill be paid by BKKH; she found clothes for the mum and took up a collection among the staff so that the mum and baby could be transported back to the IDP camp—on a piki-piki—a motorbike transport for hire.  These heart-rending stories of abandonment are balanced by those like Nelly, another baby girl with a repaired myelomeningocele.  She is the first baby of a very poor older man.  When she was readmitted with a wound breakdown, he was distraught—not only because his precious daughter was ill, but also because he did not know how he would pay the bill.  He offered to mop floors in exchange for his daughter’s hospital bill.  He came to visit nearly every day (that is unusual) and always asked how she was doing after shaking my hand.  I saw him again just the other day—about a week after her discharge.  He told me she was doing well.  I suspect he was back to pay some of the balance on her bill.  It is families like his that impress me the most.

It continues to be hard when medications are not charted, when dressings aren’t changed, when vital signs on very sick babies are not recorded for 12 hour stretches.  It is devastating when, as happened two nights ago, one of our patients dies during the night and not one of our team is notified—finding out the next morning on rounds when he was not in his bed.  Over the past two years, I have found myself becoming less angry about these situations—more bemused than anything else.  I have adopted a “smile” that I put on my face when these things happen—I am not smiling with my eyes, just my mouth.  However, I find that it helps me cope.  It does no good to get angry here—what we need to do in these situations is discover the underlying problem (it is never just one nurse, or one ward—these problems are systemic) and try to find a solution in which everyone can invest.  I believe that most of the staff here want very much to do well, to take good care of patients.  As in every place, there are those few who really don’t care.  We all need to identify the barriers to good care and arrive at reasonable solutions.

I have said several times that I have used every experience and skill gained throughout my career since I’ve come to Kijabe.  I started out in nursing working for a short time at a psychiatric hospital; recently we had two mothers with severe post-partum psychosis.  One went from bed to bed blessing each mother; the other came into the nursing station and started opening cupboards.  Because of my remote past experience, I was able to tell the nurses how to speak to and direct these ladies to keep them, their children, and the other children safe.  See, nothing is wasted.

One of the most important lessons that I have learned since coming to Kijabe is to keep in mind who I am trying to please.  Am I trying to be liked, accepted, or am I here to be obedient to and please God?  There are many times, the happiest ones, when those are one and the same.  But, every once in a while, I have to make a decision or take a stance that makes me quite unpopular with people—but I feel that God is leading me in that direction.  We continue to think about that discussion we had 18 months ago with one of the surgeons who reported great discontent among “all the nurses” with our way of giving neurosurgical care to the children.  That discussion was instrumental in making me look at our practice here.  There are areas where I can bend—organization of supplies in clinic drawers no longer is my issue.  Other areas—giving the right medication to the right child via the right route at the right time and recording it—I will continue to be a real pain in the neck about that.

There are things about Kenya that still make me smile (with my eyes) and shake my head.  The fluidity of spelling and names—we had a child admitted on 2-JUL-2012 under the name of Mary who had 4 surgical procedures and was discharged in early August—at discharge, the national insurance fund refused to pay their portion of her bill because her birth certificate name was Madeline.  Her mother never bothered to “inform” us that we had the wrong name.  After going to Limuru to straighten out the paperwork, Madeline was readmitted for a wound breakdown—and during the course of that hospitalization was called Mary or Madeline—changing from day to day.  Her mother often called her Mary—and the child, 8 years old, answered to either.  One child is admitted as Denton or Danton—no one seems to be concerned which it is.  One child was admitted as “Baby of Lydiah”—when he was 7 years old; the original admission was under that name and so all subsequent admissions and clinic visits continued as “Baby of Lydiah.”

In early August, we moved back into our third floor apartment after the repairs to the roof and ceilings were completed.  We have had a few driving rainstorms and have seen no new wet spots in the ceiling or walls, for which we are very grateful.  However, the new crown molding is beginning to crack as it shrinks, and plaster (caulk being an unknown entity here) is drifting down on the furniture.  I have spent the Saturdays since moving back scraping dried oil-based paint splotches from the floor (dropcloths are also “unknown unknowns”).

As some of you may have heard, there is rioting in Mombasa since a Muslim cleric, accused by Kenya, the UN, and the US of raising money and men for Al-Shabaab, was gunned down (shot dead in Kenyanese).  We heard that some clerics in Nairobi were encouraging their followers to go and do likewise in Nairobi.  The election is nearing, and I would say that the underlying problems (corruption, tribalism, impunity) that led to violence after the 2007 election have not been addressed—in fact, if anything, have worsened.  Several of the men charged by the ICC for crimes against humanity are running for President.  So, I ask for your prayers for Kenya.  It is a country of incredible beauty not only in its mountains, plains, valleys, lakes, but especially among its people.  They deserve better leaders.

We tremendously enjoyed the month-long visit of Wendell Lake, a neurosurgery resident from University of Wisconsin.  We had worked with Wendell at UW before we came here.  He is not the first UW resident to visit Kijabe, but he is the first to visit for a month and receive credit for his time here.  During the month of August, he participated in 60 cases—he saw more children die than he had in his career to date.  He saw the full spectrum of cases—myelomeningoceles, hydrocephalus (he saw one child with a 78 cm head circumference), spinal cord tumors (including a tuberculoma in the spinal cord—only the 9th known case in the world), head injuries, brain tumors—both adult and pediatric.  One of the more unusual cases was a man, admitted to another service, who had been mauled by a hippo.  I told Wendell, “Now you know you aren’t in Kansas anymore.”  He said he was very impressed that the missionaries here didn’t fit his stereotype of missionaries.  I would have to say that I agree wholeheartedly with that.  The Poisonwood Bible sort of missionary doesn’t exist here in Kijabe—the missionaries, both short and long term, that I have met are dynamic, fun-loving, joyful, contemplative, complex people.  Despite differences in theological backgrounds and practices, they are among the least judgmental people I have met.  Becoming part of that community has been another highlight of our stay here.

Looking ahead to the next four years, we see many challenges.  We need another pediatric neurosurgery fellow; the caseload is too high for 2 neurosurgeons, and more people need to be trained.  We realize also that we need to develop an ongoing, lasting means of support for neurosurgery here at Kijabe.  The neurosurgery service, like most of the surgical services at Kijabe, depends entirely on donations.  Equipment is donated; suture, dressings, and medications are donated.  Leland’s and my services are donated.  It is exciting that Humphrey has been hired by Kijabe Hospital as a consultant (attending doctor) as of September 1.  We need to identify and train a person who can fill my position when I leave. 

I started out this blog talking about relationships—that the Kenyans excel at them.  But one thing I’ve learned is how important relationships are to all people—not only Kenyans.  Leland and I have missed our families more this year than the first.  We are fortunate to be living in an age of Skype and email—I think often of my cousins who were missionaries in Japan in the 1950’s when it took a month to get a letter from home.  They returned home every 5 years for furlough—I’ll make 4 trips to see my children this year.  We can look forward to visits from our families—my sister and her friend Diane are planning a trip in 2013; Leland’s sister Mary plans her second trip to Kijabe next year, Michael and Marisa visited us in 2011.  A visiting short-termer asked us if we ever get homesick—and we looked at each other and said “no, we feel like this is home.”  However, ever since he asked, I’ve thought about that—and I am often “homesick” in a way—we would really like to see our kids, our daughters-in-law and sons-in-law, our grandchildren, our sisters and nieces and nephews, our friends far more often than we can now.  It isn’t the place; it is the people that we miss.

We continue to treasure your prayers for us and for the ministry in Kijabe.  We ask that you lift up the moms and babies in your prayers.  We ask you to pray for our health—I am battling a sinus infection and some residual difficulties related to my gall bladder operation.  Pray for those visiting us this month—Goong, a pediatric neurosurgeon from Thailand, Jim Trosen, our financial advisor and friend who will visit with his wife, members of the CDC who are gathering data on Spina bifida in Kenya, and members of the International Federation for Research in Hydrocephalus and Spina Bifida.

Though I am not a particular fan of the Apostle Paul, as some of you are aware, I do find great encouragement in some of his writings.

Therefore, my dear brothers [and sisters!], stand firm.  Let nothing move you.  Always give yourself fully to the work of the Lord, because you know that your labor in the Lord is not in vain. I Corinthians 15: 58

Take care, God bless.
Susan